A Cup Full of Fluid
When I got into Phoenix after my trip to Denver, I could not walk on my own accord, and had to rock the airport wheelchair not only to the baggage claim, but even to my car. When I woke up on Sunday morning at the hotel, my left knee was literally the size of a melon; a cantaloupe to be more specific. I couldn’t bend it.
Luckily, at Thunder was a friend who happened to be a nurse. I bought some vet wrap for a non-kinky purpose; I used it for compression. When I got “home” to Phoenix, we had a quick bit to eat, and then headed to a local ER. The one my friend recommended was more than 35 minutes away, so we chose one in a hoity-toity area near us, assuming that because the area was rick, they’d be able to hired decent staff.
Boy, was I wrong. Not only did they not have anyone on staff to help me with a wheel chair, but once I waited the few requisite hours to make it to triage, the nurse there not only had no idea what synvisc (my injections) were, but couldn’t seem to figure out how to put my sulfa drug allergy in my chart. Sulfa drug allergies are incredibly common, yet she had no clue, and finally gave up, just writing it on my allergy bracelet. It got worse from there.
We were put in a room with no pillows (forget my neck — I wanted to elevate my leg), no ice pack, and no way to press a button or get ahold of a nurse. Once the nurse finally came in, he rattled off a list of things it could be, and possible solutions. Not so with the doctor — he gave me more percocet (despite the fact that I told him I already was ON narcotics to handle the pain), and said that if I didn’t have a blood clot (which I didn’t), then it wasn’t an emergency, and it didn’t matter. No offer to drain my knee, or deal with the fact my foot was as large as my calf. In fact, when I pointed out I thought my allergic reaction to the red in my tattoo might be infected, he told me “no, that’s just the ink spreading out.” I had circles of reddish-purple irritation ONLY around the red leaves, yet his brilliant answer was that the ink was spreading out. Right.
Finally, after the ultra sounds (negative for blood clots), and waiting for another 3 hours with no nurse checking on me (no one ever asked me my pain level — every ER I’ve been to has always asked CONSTANTLY where I’d am with pain), and Q having to ask not once, not twice, but three times just to get a pillow for my knee, I was sent home. I asked the doctor if he’d be willing to drain my knee, or put some sort of anti inflammatory in it, but he looked me in the eye and told me it wouldn’t help. He told me doctor’s don’t like to touch other doctor’s patients. I pointed out my doctor wasn’t in state, so he told me to find a surgeon here, but I’d have a hard time. I explained back to him what he just said, and asked him to drain my knee, PLEASE. I reminded him that it took forever to get into an ortho as a new patient. He told me later on that he talked to an ortho in the ER, and he had promised to get me in his office in the next few days, and that he was “obligated” by the referral to see me.
I found out the next day when I called that he was under absolutely no obligation to see me, at any point, and that his next “new patient” appointment was more than two weeks away, and that ER doctors (at this ER) lie to their patients about this all the time.
I caused a stink. I explained that this wasn’t just random knee pain, but that I couldn’t even bend my knee enough to sit down on the toilet, that I couldn’t function at all. I called my ortho in Denver; mooses bless him. He was in surgery, but his PA called me back right away, and he texted her from outside the OR with his suggestions (draining/aspirating the knee, and injecting it with cortisone to alliviate the swelling). The PA had the ortho tech call SynVisc to see if this was a common reaction, and they called me back to let me know it was unusual (especially in one knee) but not unheard of. And finally, I snuck in on Tuesday to the Ortho in AZ.
What did he do? He looked at it for about 15 seconds, told me the only thing for immediate relief was to drain it right away, and inject it with cortisone. Surprise. When he drained it, he literally drained almost a full cup of fluid from it. You know those cups you have to pee in? Full of fluid of grossness from my knee.
Suddenly, I could actually bend my knee. It still hurt, and I still needed the cane, but I could actually put a slight amount of pressure on it without it giving out on me.
I was so angry at that ER doctor. And then I found out that I knew someone who’d gone to the same ER; he had a blood clot, and they sent him home because it was a “small one.” Two days later, he had an embolism in his lungs. So I guess that not having a cup of fluid drained from my leg isn’t that big of a deal, because it couldn’t have killed me.
But this whole experience made me question how Q viewed me, whether she’d given up, whether she’d finally realized how difficult it was going to be living and dealing with someone like me. But that’s a whole new post.
-Essin’ Em
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I’m sorry for the ER trouble. I’ve been in good ones and bad ones and the bad ones are terrible.
As to your last paragraph, it’s something I’ve thought long and hard about. I’ve posted in your comments section before, but my ex-gf had a heart condition – she had a stroke at 28 and there was a mistake in the surgery to repair something in her heart and she is permanently disabled. I didn’t know the full extent of her condition when we met or for the first bit of our dating (on good days, you’d never know how sick she really is or how awful she actually feels).
I was aware she had an issue, but I was too caught up in the amazing person she was to really care. I fell in love with her and when she got sick last summer and had to have a pacemaker put in and she pretty much slept the entire summer away, I realized what I was in for.
I thought long and hard about it. It was such a difficult thing to face, but we both wanted me to face it up front and outright and not have it come up years later having marinated in resentment. I chose her then and I would still choose her to this day. She is the one who ended our relationship; that was her choice and it wouldn’t have been mine.
The thing I keep coming back to though is the fact that we had really open, honest discussions about it. We talked about my fears and her fears and what our life might look like in the best case scenario and the worst case. They weren’t easy discussions, nor do I think they’d ever have really been finished. They were the kind of conversations that happened regularly; we both needed reassurance on a regular basis.
With each conversation though, our relationship grew and became stronger. We didn’t breakup because of her illness, I’m proud to say.
I’m sorry this is so long, but what we came back to every time was that she chose, each and every day, to be with me and I made that same choice. That’s what kept us together through some pretty serious bouts of illness and long hospital stays. We had to trust each other, she had to trust me when I said, yes, I’ll stay with you that I really meant it and was doing it because I wanted to, not out of guilt or fear or shame or whatever it could be and I had to trust her to do the same.
It came back to trust. Each and every time. And from what I read here, it appears that you and Q have a lot of trust between you.
glad to hear the knee is better—no help to that awful experience at the ER. and I’m curious to what you alluded to at the end of that post, your thoughts on being in a relationship and dealing with these things. it’s an unusual situation, though clearly not unique, there are many people who deal with physical limitations. I hope you’ll keep writing about how it unfolds.
also: you have a tea named after you?? fancy!
Ashley- I can’t tell you how much what you shared meant to me. I read it out loud to Q, and cried. Thanks.
Sinclair – I’ll keep you updated. And yes, tea. Delicious.
Wow, I’m really sorry that you had this experience! It is incredibly frustrating when people refuse to believe that you:
1.Actually do know your own body
2.Are not seeking narcotics
3.Are *not* hysterical!! (I really hate this one)
4.Have insight and knowledge about the condition(s) that you’ve been living with, and *do* have the right to decide what should/should not be done to your body!
That’s atrocious. Just … miserably atrocious. I can’t believe they put you through that. Another thing on the bucket list for why CO is better than AZ.
I hope you write more on that last paragraph too. It’s a very real thing that comes up in a lot of relationships, and so rarely gets talked about in a balanced way.
Also: Did you save the fluid drained from your knee and package it up pretty with a bow and send it to the ER doc? If you didn’t, you should’ve. ;)
Bad – agree. It happens way too often.
Alphafemme – Yeah. AZ is out, yo. And I’ll definitely be writing more about that.
No on the fluid, but I really did contemplate taking a picture and tweeting about it :)