Sexuality Happens

Archive for the 'disability' Category

It’s A New Year

I’m not particularly big on New Year’s Resolutions, given the likelihood that they’ll be broken some way, some how, in the very near future. I mean, really, how many people ‘fulfill’ their resolutions?

Q has decided to eat predominantly vegetarian/pescitarian. Which is awesome. Our house is pretty much vegetarian anyways (aside from the occasionaly sliced turkey for Q’s sandwiches), but this means it will be 100% veggie, and that we’re going to both be vegetarian, at least for a bit while Q tries this out. As someone who has been vegetarian for 19 years, it’ll be nice having a mostly veg partner. I’ve never ever been the preachy type — I’ve only ever dated one other vegetarian. I don’t judge, and I don’t tell people what they shouldn’t eat (especially as long as they don’t tell me what I SHOULD eat), but it’s nice having someone on the same page as me.

I’m thinking that next week, when I get back from the AEE/ANE/AVNs in Vegas, I’m going to try a raw diet for a week while Q is off teaching at a social justice leadership program. My old migraine meds (which I’ve finally titrated off of) helped me to gain 30+ pounds over the past year. Now that I’m off of them, I’m hoping a week of raw food might jumpstart my body into starting to lose some of those…and if not, at least it’s a very healthyl, vitamin filled week. Plus, we just bought a living social deal for 20 sessions of Hot Yoga each. I’m a little nervous, as I’ve dislocated my knees doing yoga before, but there are so few types of exercise I can do without massive pain that I’m figuring anything is worth a try right now.

My goals (NOT resolutions) for 2011:

*Book more lectures/workshops/classes at Colleges/Universities and Kink specific events (if you’re interested in having me, check out ShannaKatz.com for more info!)

*Finish at least one of the 4 books I’m currently working on and get it ready for publication

*Get more sex coaching/relationship counseling clients, both face to face and via skype.

*Move back to Colorado with Q and our kitties

*Help my mother get her house packed and ready for sale in 2012

*Have a fabulous queer celebration of love/wedding to the love of my life in October without going into any debt

*Make enough money to finally pay off medical 2008 and 2009 medical bills, so I can finally work towards paying my student loans

*Get an Njoy Eleven. No, seriously. It’s a goal. And heck, I really want a Spareparts La Palma harness too.

*Once back in CO, join a gym with both recumbant bikes and a pool so I can work on getting more cardio in. If I lose a little weight to where I was, I know my knees will feel better.

They are goals of sorts, but much more year-long and less number specific. I find that when I set goals like “lose 10 lbs by _____” or “make _____ money” or “get in touch with ________ friends,” I am less likely to follow through than when they are life changes.

Best of luck to everyone in the new year!

Essin’ Em

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HNT: Folsom

The above picture is my outfit that I wore for Folsom Street Fair in San Francisco last weekend. It’s an amazing outfit, period. I found the skirt on sale for $5 at Target, the hose as a two-pack (the other are much tighter weave, and are leopard print fishnet!) for $7, and then of course, my favorite fire corset and rainbow zebra shoes, coming together for an incredibly hot outfit. I love it.

I had a blast at Folsom, although it was quite hot, and there was far too much walking involved for a poor little femme using a cane. Maybe if I go again in the future, I’ll get me some ponies to pull me around.

My demo went great. About 45-50 people in the audience, two lovely demo bottoms, and lots of fantabulous queer energy made for a VERY fun “kinky games people play” demo at the Venus Playground. Plus, I got to see Madison Young, Mollena, Garnet Joyce, and other fabulous sex positive pervs…and then I finished off the day dancing with an old friend from Philly, and the love of her life. I give that a good thumbs up.

And now, I’m off to New York!

Happy HNT everyone!

-Essin’ Em

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A Femme Crip Rant

I read parts of this at Sizzle last month while in San Francisco presenting at Feminia Potens.  It was for an open mic dealing with sexuality and disability, and this is what I came up with (as well as an erotica story).  I thought I’d share…

-Essin’ Em

I’m here to talk about the intersections between sexuality and disability.  I want to tell you about the man in a wheelchair who was suspended in rope, wheel chair and all, and was ecstatic at the chance to be flying high above the dungeon. I want to tell you about the woman who was in so much pain from sculliosis, but discovered that when her sir gave her a good beating, she could eroticize the pain and work through it.  I want to tell you about the quadrapelicic woman that spent a good chunk of time exploring and trying new things with her partner, and eventually could experience sexual pleasure when he stroked her cheek in just the right way. I want to tell you about the first time I found someone who understood me, and check in, but didn’t try to do everything for me, and made me feel like a sexual goddess, despite not being able to do many of the sexually constructed things that people do when they fuck.

But how can we speak of intersecting sexuality and disability when we can’t even validate people’s sexuality or disabilities? When we create this hierarchy, we prevent people from exploring the rest of themselves, from getting to figure out who they are and how all of this fits into other parts of them. Instead, people are fighting to even be seen as who they are.

I sat in my hotel for a few hours this morning, trying to place my swirling thoughts onto paper, to share with you what I so often say. To sound cool, and interesting, and part of performance piece.

Do you know how hard it is to pull words out of your head, put them down, and make them sound right when you’ve got a cloud of painkillers fuzzing up your brain and pain radiating up through what feels like every joint and your entire body?

It’s difficult to say the least.

We’re in the technology age, so rather than crumpled pieces of paper all over the floor, I have minimized word documents, all begun so well, and then trailed off into a narcotic induced rant of the parellel between my Femme identity and my identity as someone who is disabled.

What it all boils down to is the fight for recognition, and the desire to just be, and not fight anymore.

My gender is often invisible to others. People see me as alternative, and often times as straight. I experience more anti-Femme hatred and bigotry in the queer community than I have experienced anti-queer sentiment in the rest of the world.

My disability is often invisible to others.  Unless it happens to be a day where I’m walking with a cane, or someone sees the epic travel pill pack that follows me everywhere in the deep depths of my purse, people don’t see me as disabled. In the community, I am told that I should consider myself “lucky”  that I’m not MORE disabled, not more visible.

I don’t want to fight to be who I am.  I don’t want to wear rainbow necklaces or name-drop “my ex-girlfriend” in order to be seen as queer in the queer community, and I don’t want to go flashing my handicap permit or show off my scars in order to be recognized as someone with disabilities by others in the same boat.

I fight the mainstream every day just to have accessible buildings and parking, and to get the same rights as everyone else; to share insurance, to not be fired for my orientation, and more. I do not have the time, energy or patience to fight within my own community.

When did we create a hierarchy of oppression?  I look more queer than you do, therefore I’m a BETTER queer.  I have a disability that affects more areas of my life, therefore I’m MORE disabled than you are.

If we cannot support each other as members of the same community, how can we work on intersections of identity. I’m a queer femme sex educator kinky perverted disabled Jewish awkward snarky cat loving tea drinking oh so horny person. How can I accept all these part of me, if the individual parts themselves are rejected by the community?

How can I even start to think about my sexuality and how it relates to others when others cannot relate to me based on who I am?

I am disabled, but that doesn’t disable who I am. I am still sexual and fun and deep and witty and queer and kinky and all these parts of ME. I want to be who I am, not spend my energy fighting to be seen, but rather, integrating all of me into my sexuality, into my life, into this magical and wonderful world.  I wonder, is it really that hard to do?

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Mini Health Kvetch

I just found out from my doctor (a voicemail, no less) that my thyroid? Which the blood work came back negative on, but felt enlarged, so he ordered lots of test? Well, it’s covered in lots (aka “dozens”) of cysts. Apparently, no nodules, which the message said was good, but lots of cysts. Which may or may not be benign. I have to call an ENT on Monday and try to get in for biopsy.

Sometimes, I feel like I’m cursed. Like I did something, as some point in my life, to set me up for all of these health issues. So far, just this year, I’ve dealt with my usual knee pain, arthritis, bursitis in my hips, allergies, migraines, and chronic pain. Fine. But I’ve had to add on a rapid weight gain (30 lbs in 6 weeks) all in my stomach for not apparently reason (no change in diet or exercise), a blown up knee filled with fluid, a 5-day-long almost unstoppable migraine, a cervical cancer scare, and now this.

I’d just like to go six months, SIX MONTHS for mooses sake, without any NEW health issues. Not no health issues at all, just no new ones. I can’t afford it, they are completely depressing, and I have no idea why or how to make them better. I’ve tried Western med, herbal remedies, acupuncture, massage (which does help migraines but is super expensive), reflexology, cranial sacral therapy, etc. My next thing to try is reiki  and energy work, if I can find an affordable practitioner. Nothing seems to help, and these issues just seem to keep coming at me. I don’t know what to do.

End of mini rant. You were warned, by the title.

-Essin’ Em

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Relationships and Emotions

Since I came back from Florida, it’s been non-stop. Q’s sister was in town visiting from Long Island. Jamye Waxman was in town to speak. Q started her first day as a grad school professor. I still haven’t had time to process all the emotion and family drama from my Florida trip, and Q is on a meditation kick (which I’m trying to do daily, and seems to give me headaches).

The result? Right now, we have an incredibly mercurial relationship, almost bi-polar. One minue, we’re holding hands, looking into each others’ eyes, sharing frozen yogurt, being all lovey dovey. The next, we’re arguing with each other about little things, being nit picky, almost ignoring each other.

People keep telling me it’s Mercury in retrogade. I don’t normally believe in that, but we all like to cling to something to explain why our lover and ourselves have suddenly started acting bi-polar towards the relationships…and I mean hell, Mercurial (the temperament/actions) and Mercury sure sound alike, right?

But it’s made me realize, along with some posts on Alphafemme’s blog, that relationships constantly require work, even if they’re working out just fine. Being complacent about the relationship leads to things getting stale, or issues not being worked out. However, I’m also realizing that working on and improving relationships takes a lot of hard work.

This is the longer sexual/lover relationship I’ve ever been in. I mean, I’ve made friendships work for years. My best friend Annabelle and I have been friends since 2002, and my best friend E and I since 1999. Clearly, I can handle long term relationships/friendships, including their natural ups and downs.

However, I’m new to making long term lovers/partner relationships work. I didn’t realize how hard it can be, how much effort need to be involved in truly communicating (instead of just saying yes and no, or I like this/don’t like this), how much it can hurt as we work through our issues, as well as personal issues that get brought up.

I’ve never been a highly emotional person before, but I am often with Q, because I just have so much love and trust for her, which seems to bring out this side. I need to work hard not on pushing them down, but not letting them run wild. I let little things hurt more than they should, and I feel a lot of my OCD-ness and anxiety returning, something which I would like not to happen.

Then there is the disability thing. As things get worse, and I have more bad days, and hospital visits, I always get worried that something will be the last straw, and she won’t want to deal with me anymore. I’m trying to figure out how to even phrase this feeling. I’m not sure yet.

I have a huge fear of being left/abandoned by those I love; friends and partners alike. It happened with Julius, and with Nikki, and with the Kinky Whore, and I’m terrified it’s going to happen with Q. It’s not logical, I know, but I have a history of people I love leaving me. Can I trace it back to daddy issues, and my father dying when I was 13? Possibly. Who knows? Regardless, no matter how much I trust Q, I still have this voice in the back of my head, especially whenever we’re aruging or trying to improve things, telling me that “if you don’t do it right, if you mess up at all, Q is going to leave you, just like everyone else.” I need to figure out how to quiet that voice, and trust in Q and in what we have together.

Q pointed out to me that relationships cannot thrive and grow unless we ourselves thrive and grow. Whether that is through writing, therapy, meditation (I’ve decided I’ll try it daily for 3 weeks, and then decide if it is in fact helping me), etc, we have to, as individuals, work on ourselves in order to work on our relationship.

And so, I’m working on harnessing my emotions, learning to let things go. I’m trying to not attach so much importance to little things. I’m trying to re-create more of my own life here. It’s hard. I don’t really have friends. I strongly dislike the kink community, there is no queer community, and most of the lesbians we’ve met drink a lot and do drugs, neither of which is for me. I’m having a hard time creating my own life outside of Q and my relationship because I’m in an area where I don’t fit, where I don’t belong. I think that’s part of the issue.

And I’m going to work on, I’m not sure how, but I’m going to work on this fear of abandonment. I’m open to suggestions, ideas, etc. How do you convince yourself to leave your past alone and trust in the future and in your parnter, completely?

-Essin’ Em

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Day 5: Your Dreams

This is part of my 30 Days of Letters endevor. This is supposed to be a letter to your dreams.  I didn’t know if they meant like dreams you have at night (which I have been having some freaking crazy ones as of late), or dreams like your hopes and goals. I decided to go with the latter.

Dear Dreams…

It’s so interesting how you’ve changed over time. When I was five, I wanted nothing more in the world to be an archaeologist, like Indiana Jones. Then, it was a vet. When I got to high school, I decided I wanted to be a counselor for gifted children, and went into college expecting to do so. Somewhere in there, I discovered sex ed, and dreamed of working for Planned Parenthood, which brought me to grad school. From there, I fell into the world Feminist Porn and Porn for Women, and then into the world of sex toys. I wanted to be a feminist pornographer/sex toy shop owner with a studio/dungeon in the basement.

And now? I’m not sure. I am a sex educator, I am a feminist pornographer, I am a blogger, I am a writer, I am a reviewer, I am a marketer. I’m not sure what direction the tide will take me next; things are always changing in life, and it seems even more so in the sexuality field.

I had dreams of living in Europe…not likely with my three cats and partner now (although a long term visit may be in order). I had dreams of owning a house, which I almost did back in Philly. Now $15,000 of medical debt is going to push that one to the back burner for a while.

I have dreams of being able to easily walk up stairs, and maybe go for a jog. A realistic dream in the long run perhaps, but very expensive and time consuming and difficult to find a doctor who will do knee replacements on someone this young. This dream seems like a more long term one.

So for now, as I look at it, my dreams are:

*Getting out of the epic amount of debt Q and I share

*Moving back to Colorado by May 2011

*Celebrating our love with a wedding in October 2011

*Speaking at more colleges and universities (long term – be as cool as Tristan and Ducky and Nina Hartley and Midori and Megan Andelloux and the rest of the heavy hitters of sex ed)

*Traveling with Q to Europe – she’s never been, and I miss it badly

*Eventually owning our own home (10 years?)

*In the next 10 years, owning a Hybrid

*Add more states to my “I’ve been there!” list

*Try more cupcakeries and vegetarian restuarants across the US

*Figure out what to do about further education. I always thought that I’d want a PhD, need a PhD, have no other plan than to finally get my doctorate. Now I’m not sure.

*Meet many more amazing people, both online and in real life

*Live an outstanding, crazy and fulfilling life with Q and our kitties

*Enact change and fight for social justice and equality.

Dreams, I will try my best to reach for you, and honor you, but I don’t want to be so specific anymore. I want more of a concept and less of the exact science. I want to dream big, and aim in many directions. Thank you dreams, for being there, for changing with me, for helping me grown.

-Essin’ Em

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And I’m Back

palm beach

I’m back. I’m alive, but barely. It was an emotional roller coaster of a trip. For those of you that follow me on Twitter or Facebook, thank you for putting up with the drama.  

Above is a picture I took from my hotel room’s balcony of the beautiful beach. I spent all of 1.5-2 hours on it over 5 days.

Highlights of what happened:

*My aunt’s partner is ok. She’s recovering from the double mastectomy and reconstruction. My aunt is not a naturally good caretaker, so a lot of that fell to us as far as getting pudding cups for her to eat, encouraging icing, keeping my aunt from leaving her drugged up partner alone to go to dinner with us, etc.

*My grandfather does know I’m a “lesbian.” I think my aunt blames myself, and the Amelia Erhardt barbie she gave me when I was little. Despite him knowing about this, I’ve been discourage from both my aunt and my grandfather from talking about Q. Needless to say, he will not be coming to the wedding.

*My sister and mother clearly dislike me. At one point, my sister directly told me that my presence makes her life miserable.  10 minutes later, she asked for advice on shoes. They have so normalized their dislike of me that it no longer interrupts their flow when they tell me such things.

*I had amazing food on the trip. Seasons 52 (a restaurant) is AMAZING, as was the Bruschetta with Goat Cheese Creme Brulee I got at O’Gradys in Delray Beach.

*My grandfathers partner/common law wife is mentally and emotionally abusive. To the point where he is scared to go home, but more scared to be late getting home. I don’t know what I can do about this.

*I don’t think my family recognizes my disability, particularly as far as needing to take my meds regularly, and with food.

*I did find two nice cardigans for cheap at TJMaxxx, and bought my sister an outrageously expensive purse for her birthday.

*I finished all 700 pages of the Complete Works of Sherlock Holmes, Volume 2.

*I only cried 3 times in 5 days.

*I experienced a horrible case of disability discrimination from a Southwest Airlines gate attendant.  They’ve always been very disability aware, and I filed a complaint. I’m interested to see their response.

*I will not see my family (mother/sister) again until either January or next summer, and my aunt/her partner/my grandfather until next summer.  Will there be phone/email fights? Yes. But will I feel like I’m the worst person in the world for being myself? Not again until January or the summer.

That’s all. Happy to be home with Q and the kitties.

-Essin’ Em

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A Cup Full of Fluid

When I got into Phoenix after my trip to Denver, I could not walk on my own accord, and had to rock the airport wheelchair not only to the baggage claim, but even to my car. When I woke up on Sunday morning at the hotel, my left knee was literally the size of a melon; a cantaloupe to be more specific. I couldn’t bend it.

Luckily, at Thunder was a friend who happened to be a nurse. I bought some vet wrap for a non-kinky purpose; I used it for compression. When I got “home” to Phoenix, we had a quick bit to eat, and then headed to a local ER. The one my friend recommended was more than 35 minutes away, so we chose one in a hoity-toity area near us, assuming that because the area was rick, they’d be able to hired decent staff.

Boy, was I wrong.  Not only did they not have anyone on staff to help me with a wheel chair, but once I waited the few requisite hours to make it to triage, the nurse there not only had no idea what synvisc (my injections) were, but couldn’t seem to figure out how to put my sulfa drug allergy in my chart. Sulfa drug allergies are incredibly common, yet she had no clue, and finally gave up, just writing it on my allergy bracelet. It got worse from there. 

We were put in a room with no pillows (forget my neck — I wanted to elevate my leg), no ice pack, and no way to press a button or get ahold of a nurse. Once the nurse finally came in, he rattled off a list of things it could be, and possible solutions. Not so with the doctor — he gave me more percocet (despite the fact that I told him I already was ON narcotics to handle the pain), and said that if I didn’t have a blood clot (which I didn’t), then it wasn’t an emergency, and it didn’t matter. No offer to drain my knee, or deal with the fact my foot was as large as my calf.  In fact, when I pointed out I thought my allergic reaction to the red in my tattoo might be infected, he told me “no, that’s just the ink spreading out.” I had circles of reddish-purple irritation ONLY around the red leaves, yet his brilliant answer was that the ink was spreading out. Right.

Finally, after the ultra sounds (negative for blood clots), and waiting for another 3 hours with no nurse checking on me (no one ever asked me my pain level — every ER I’ve been to has always asked CONSTANTLY where I’d am with pain), and Q having to ask not once, not twice, but three times just to get a pillow for my knee, I was sent home. I asked the doctor if he’d be willing to drain my knee, or put some sort of anti inflammatory in it, but he looked me in the eye and told me it wouldn’t help. He told me doctor’s don’t like to touch other doctor’s patients. I pointed out my doctor wasn’t in state, so he told me to find a surgeon here, but I’d have a hard time.  I explained back to him what he just said, and asked him to drain my knee, PLEASE. I reminded him that it took forever to get into an ortho as a new patient. He told me later on that he talked to an ortho in the ER, and he had promised to get me in his office in the next few days, and that he was “obligated” by the referral to see me.

I found out the next day when I called that he was under absolutely no obligation to see me, at any point, and that his next “new patient” appointment was more than two weeks away, and that ER doctors (at this ER) lie to their patients about this all the time.

I caused a stink. I explained that this wasn’t just random knee pain, but that I couldn’t even bend my knee enough to sit down on the toilet, that I couldn’t function at all. I called my ortho in Denver; mooses bless him. He was in surgery, but his PA called me back right away, and he texted her from outside the OR with his suggestions (draining/aspirating the knee, and injecting it with cortisone to alliviate the swelling). The PA had the ortho tech call SynVisc to see if this was a common reaction, and they called me back to let me know it was unusual (especially in one knee) but not unheard of. And finally, I snuck in on Tuesday to the Ortho in AZ.

What did he do? He looked at it for about 15 seconds, told me the only thing for immediate relief was to drain it right away, and inject it with cortisone. Surprise. When he drained it, he literally drained almost a full cup of fluid from it.  You know those cups you have to pee in? Full of fluid of grossness from my knee.

Suddenly, I could actually bend my knee. It still hurt, and I still needed the cane, but I could actually put a slight amount of pressure on it without it giving out on me. 

I was so angry at that ER doctor. And then I found out that I knew someone who’d gone to the same ER; he had a blood clot, and they sent him home because it was a “small one.” Two days later, he had an embolism in his lungs. So I guess that not having a cup of fluid drained from my leg isn’t that big of a deal, because it couldn’t have killed me.

But this whole experience made me question how Q viewed me, whether she’d given up, whether she’d finally realized how difficult it was going to be living and dealing with someone like me.  But that’s a whole new post.

-Essin’ Em

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A Weighty HNT

As I try to live a healthier lifestyle (even before this wedding necessitated weight loss), I’ve been working out my arms. I can’t do much cardio with my knees and hips (just swimming, and our pool is broken, and a recumbent bike, which I don’t have access to), so working out my upper body and stretching out everyday is the best that I can do for now.

Q has noticed the increase in my muscle tone, especially when we’re fucking, so at the very least, there  is that. I like working on my arms too, because I don’t have to get dressed all fancy in work out gear; I often just sit or stand naked in the living room and use our dumbells.

I need to get some heavier once, and resistance bands too, as I continue to my goal of getting as in shape as I can without a pool or recumbent bike. I may be a fat and disabled, but I will be fit, fat and disabled, so there.

Happy Half Nekkid Thursday to you all!

-Essin’ Em

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Educational Series on Sexuality and Disability

Sexuality and Disability Educational Series

For all Disabilities and Sexual Orientations
June 30 – September 22
Wednesdays, 6:30 – 8:30PM
Center for Independent Living, Berkeley, CA
Suggested Donation: $25 per class
Sexuality and intimate loving relationships are a fundamental part of everyone’s life.  This 12-week series is designed for individuals who are living with a disability as well as his or her friends, families, partners and attendants.

You will gain ways to improve:

•      Self-Esteem and Body Image                               
•      Healthy Relationships
•      Delicacies of Kissing and Touch
•      Chronic Pain and Sexuality
•      Sexual Health
•      Practical Tips and Tools for Enhanced Sexuality
•      Solo Sex & Partnered Sex

Our philosophy:
•      Participants will have a chance to experience the support of peers and have an increased sense of community
•      Attendees can experience a sense of empowerment, hopefulness, improved self-esteem and self-confidence
•      Learn new skills and resources to expand knowledge regarding one’s sexuality, sexual health and intimate relationships in a nonjudgmental environment
•      Workshop goals to be achieved through presentation of topics, facilitated sharing and experiential exercises

Limited Space Available.  To reserve your place please email Dr. Biggs at rebiggs@mac.com

For more information go to www.somaevolution.org

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